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12.15.2010

a very special edition of wednesday {words}

One of the greatest things about {TML} being a part of my life is that it helps me to connect with people I would never come in contact with otherwise. Probably the greatest thing about it is that we can help to make those same kinds of connections for friends when they need connecting more than anything.

Meet Amy. She is a photographer in my area and we were blessed to find each other through {TML} on facebook. (Check out her site, www.amypricephotography.com. She's awesome!) We met over sushi a few months ago and she told me about her sweet baby, Liviana, and how she was concerned about her health. Liviana has fought for her life since the beginning, but the fight has only just begun.


Liviana, just shy of 3 years old, has just been diagnosed with Metachromatic Leukodystrophy. Do a little research and you'll find that it's a devastating condition and something that sweet Liviana will not be able to conquer. No one knows what the journey will be like for Livi, Amy and their beautiful family, but they need all the love and prayers that we...a great and strong community of women, mothers and photographers...can send them. Amy is one of our own and we need to rally around her to help through these tough times.



Amy is an amazing woman, mother and artist. Her children are beyond gorgeous and the love in their home has the structure busting at the seams.



As I left their home after taking these pictures, her wonderful husband asked me to make sure Amy kept shooting. Don't let her give up her passion, he said. So I intend to do just that, with your help. We all know that inspiration ebbs and flows, but we can't give up on that which we love.



So, for this special edition of {wednesday words} I'd like for each of you to leave your own words of encouragement and inspiration! Think of it as a call to arms! This is a difficult time, but let's fight a good fight!

Please take a moment to read about Liviana's Journey.


Donate if you can HERE.



Encourage, inspire, and support Amy, Liviana and the entire family with a quick comment.



Pray. Send good vibes. Keep them in your hearts. Hug your babies.

xoxo


31 comments:

  1. Amy - may God above bless you with many moments of love, life, and enjoyment so accurately and emotionally captured with photographs that you may revisit these treasures of your heart at any time and rekindle that bond of love when you most need it. Sending blessings to you and your family. - Meg in Ohio

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  2. Big hugs, prayers, & virtual cocktails to you, Amy! As another mother who has watched a child struggle to survive and ultimately lost one in the process..... my heart goes out to you in a way few can fully comprehend. This experience - difficult as it is in soooo many ways - will change you & so many others. Growth is painful, but if we focus on taking the best out of whatever life offers us (even when it's the terrible CRAP) the legacy left by the struggle is an incredible ability to touch the lives of others - as well as to offer strength and comfort to those walking in similar shoes. I pray for your family's comfort and peace....

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  3. Amy, it's so hard to know what to say that could help you...even *I* have a tough time with it. lol But I know that when I'm at a loss for understanding, I remember that verse that says "lean not on your own understanding..." Sometimes it's just beyond us and sometimes we have to learn to be ok with that. This quote has stuck with me all year and I recall it when I am troubled with uncertainty...

    "Have patience with everything that remains unsolved in your heart. Try to love the questions themselves, like locked rooms and like books written in a foreign language. Do not now look for the answers. They cannot now be given to you because you could not live them. It is a question of experiencing everything. At present you need to live the question. Perhaps you will gradually, without even noticing it, find yourself experiencing the answer, some distant day."
    -- Rainer Maria Rilke

    Love ya girl!!! Jen Pinkerton

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  4. Anonymous12/15/2010

    Sending LOTS of prayers to you and you sweet baby girl!

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  5. I can just feel the love in these photos! Many hugs to you all!

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  6. A beautiful family and a beautiful Livi! I am praying for a miracle for this sweet little girl and praying for peace that transcends understanding for this loving and inspirational family!

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  7. So many prayers for you. Keep shooting, not only for yourself, but for your family. It will help. I promise.

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  8. {{HUGS}} and prayers sent your way during this imaginable time. I found a poem in my devotional bible the other day, that I wanted to share:

    Our Father knows what's best for us, so why should we complain?
    We always want the sunshine, but He knows there must be rain.
    We love the sound of laughter and the merriment of cheer,
    But our hearts would lose their tenderness if we never shed a tear.
    For growing trees are strengthened when they withstand the storm,
    And the shard cut of the chisel gives the diamond grace and form.
    God never hurts us needlessly, and he never wasters our pain,
    For every loss he sends to us is followed by rich gain.
    And when we count the blessings that God so freely sent,
    We'll find no cause for murmuring, and no time to lament
    For our Father loves his children, and to him all things are plain
    So he never sends us pleasure when the soul's deep need is pain
    So whenever we are troubled, and when everything goes wrong,
    We know God's working in our hearts, to make our spirits strong.
    ~~~~~~~~Amy Carmichael

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  9. Prayers and love for this family!
    If words were hugs I'd write out a million....

    Keep shooting mama!! Keep shooting!! Losing my dad... it helped me heal... little by little... click by click... seeing the world in a whole new way ....

    Peace, Love, Prayers and Hugs from St Louey!

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  10. prayers and love to your beautiful family.

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  11. xoxoxoxo. and many many prayers of love, encouragement and strength sent your way.

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  12. many thoughts, prayers, love and hugs to you Amy. May you continue to shoot in sweet liv's honor.

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  13. I am so sorry for this pain in your life. I dont really have any words. I lost a precious baby during birth on his due date a year ago. God has healed our hearts so much through the birth of another precious baby boy a few months ago but the pain and the questions never go away completely... This post really helped me this week

    http://503galleries.com/blog/a-note-about-grief/

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  14. and yes look for the beauty in every moment and keep capturing it

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  15. and all the photos are beautiful especially the last picture of you three is so very very precious

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  16. What a beautiful family! I am so sorry for the recent devastating diagnosis.

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  17. You have a gorgeous family and it's clear that the love abounds within it. Remember in the tough times to just put one foot in front of the other, to just take the next step without worrying about the next several steps or the bigger picture. You will make it through! May God shine through your family and strengthen you.

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  18. Your work is just as beautiful as your family. And that beauty shines bright in these photos. Keep shooting and may God bless you and your sweet little girl. I will pray for strength as well as peace for you. And please accept my virtual hug -xo, Erika, Tampa FL

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  19. You are blessed in many beautiful ways. I see those blessings in these photos. I will pray for your darling Livi and my four kids will do the same. Continue to shoot! Capture the good and the bad, it is good for the soul!
    All my love from Vegas!
    Tracie Graf

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  20. My eyes are welling up with tears with this story...it touches my heart in so many ways: as a photographer, woman, human being. I truly hope that Liviana lives a happy life full of love and I will pray for her and her family. Don't give up, never give up...and don't stop taking photos!

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  21. Sending many prayers and much love to this beautiful family. As the others have said, keep shooting, document and savor every moment.

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  22. There is nothing more horrific for a mother to have to face then this. Lean on God for strength and don't be afraid to ask others for help. You aren't alone

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  23. As a mother, I know there are no words that could begin to ease the pain. Your family will be in our thoughts & prayers.

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  24. Anonymous12/15/2010

    Thoughts and prayers are with your family. As a mother I am sure this is very tough to see a beloved child in pain. Try use your daughter's strength as inspiration when you shoot... it can be your magic!

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  25. i send you strength. i send you a shoulder to lean on. i send you love. i send you laughter. i send you hope. i send you joy. your baby is precious. she is an inspiration as are you. that camera of yours is a very powerful healer. grab it and capture all that you can. xo meg {tml}

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  26. Many prayers!! And please keep taking pictures of your precious little girl and family- all the little moments will be even more special to you as time progresses!

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  27. Praying for your sweet family!! May God give you peace and strength on this road!! Your family is beautiful and I will continue to lift you all up in prayer! Love, McKenna

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  28. It breaks my heart to think about what she and her beautiful family are struggling with. I'm not a religious person, but I am praying for them.

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  29. There are no words... I spent much of my evening reading your story, crying with you along the way. My prayers are sent your way!

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  30. Yesterday I took over a session for Amy. I thought of her the entire time. How much I know she wishes she could have been there. But that she was spending that precious time with her sweet angels. I know those moments are incredibly precious at this time. I pray that God hears every single one of these prayers and heals their family in ways we can only dream.

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  31. I am so very sorry for Liviana's diagnosis. We lost a baby a year ago due to severe Amniotic Band Syndrome. It deformed her to the point that she couldn't survive it. Cherish the moments, document it. But take the time to just live in the moment with her, not behind a camera. The best thing that came from our losing Vivian Jane, was that our 3 remaining daughters were given the incredible gift of loving, selflessy, with no fear. How many people truly get to do that? And learning at an early age, what some never learn - to not take this life for granted. Not this day even. The angels that are in our lives, and your Liviana is, oh they are precious and life changing. They are sweet and heavenly gifts. Our Vivi was like a hurricane. She flooded us with tears, we didn't know which way was up for months, she bent us, broke us, and wiped us out. And what was left after it was all said and done? A clean path, with all the unimportant things that would have normally cluttered us, out of the way. That is when the sweet green grass, the new growth started. That was her gift to us. We know so much more what is important, what is dear and precious. And we never would have, had it not been for her precious and deeply touching time here. All that, and she never even drew a single breath. You are a blessed family indeed. Capture those memories. They are better than gold. Vivian is what drives my photography. We have a handful of photos of her. I wouldn't want that for anyone. I wish we had rooms full. But the few we have, are beyond treasured. I am so grateful for them, and the photographers that came from NILMDTS. Many blessings of peace, and love to your family. Your little girl is not only gorgeous, but she is a continuous gift to all that know her. Thanks so much for sharing her with us. Much, much love to you all.

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